Date of Award
Master of Occupational Therapy (MOT)
Amyotrophic Lateral Sclerosis -- diagnosis; Amyotrophic Lateral Sclerosis -- rehabilitation; Occupational Therapy -- methods; Self-Help Devices; Terminal Care
Purpose: The purpose of this scholarly project was to develop a comprehensive document that describes the role of the occupational therapist in working with clients and families affected by Amyotrophic Lateral Sclerosis CALS) from diagnosis to end-of-life care.
Method: A literature review was conducted using the AJOT, PubMed, CINAHL, and OT SEARCH databases. Information was gathered regarding current literature of ALS, the disease process, occupational therapy's role in ALS treatment, caregiver's role in end-of-life care, assistive technology, palliative care options, and additional support strategies. Additional ALS material was gathered from the ALS Association's informational manuals.
Results: Designed from the perspective of the Canadian Model of Occupational Performance-Enablement, the product, "Embracing Life with ALS: The Role of . Occupational Therapy from Diagnosis to End-of-Life Care", was created. The role of the occupational therapist was integrated within the Canadian Model's ten enablement skills, eight action points, and significant findings from the literature review. Special attention was placed on an assistive technology section for compensation in order to allow the client to remain as independent as possible throughout the disease progression.
Conclusions: The occupational therapy document created encourages a holistic approach to ALS care that involves both the client and the family in collaboration with the occupational therapist. The document addresses physical, mental, emotional, and spiritual aspects of the client enabling them to engage in meaningful occupation and increase quality of life.
Edwards, Chelsey and Ferguson, Amy, "Embracing Life with ALS: the Role of Occupational Therapy from Diagnosis to End of Life Care" (2012). Occupational Therapy Capstones. 207.